Sunday, October 28, 2012

Cora's Eulogy

A year ago today we held Cora's funeral service. When we met with our minister, he asked if we wanted to speak at the service. Neither of us were able. I don't think I could have made it through without crying; I don't think I could make it through now if I had to read this aloud.

Shortly after I found out I was pregnant, but before I had an ultrasound, I told Kelly that I thought I was pregnant with twins. I had no evidence, simply a gut feeling. When we went for the first ultrasound and the tech told us that we were expecting twins, we started laughing ~ at first because we could not believe it, and then more nervously when we realized we would have four children under four!

We found out the genders for Rory and Kyan by ultrasound, and I had asked Kelly if he would be okay not finding out for baby three. He agreed, and even when we found out we were having twins, we decided to wait until they were born to learn their genders. So ultrasound after ultrasound I said no to finding out the gender(s). Until one day when the ultrasound tech slipped up and suddenly I knew. I knew Baby A was a girl and Baby B was a boy, and I instantly knew that one of each was exactly what our family needed. And I also knew every single name on our "girl" list was not right (and that the one name on our boy list was exactly right).

After Kelly and I settled on Cora, we then went to work on her middle name. The boys all have middle names based on family names, and I wanted Cora to have the same. We chose Lily, which is the meaning of Suzanne. Cora Lily Murphy ~ girly, but not frilly; unique, but not bizarre; the perfect name for our daughter.

We had a great team with us the day Cora and Crosby were born. One of our nurses took tons of pictures for us as Cora, who was older by a minute, and Crosby, were delivered. The nurses brought Cora over and put her into Kelly's arms and I just stared and her, and then at Crosby. I couldn't take my eyes off of them. One of the nurses asked me to say something about how I was feeling for a video and I didn't even have words. It was perfect. My family was complete and I was the blessed mother of four beautiful children.




In a eulogy we remember and celebrate a person's life, often through stories that capture the person's personality. We don't have many stories, but I can tell you that Cora was sweet, but also feisty. She quickly learned that her cries brought mommy or daddy running to her. She was working very hard on focusing on the little animals on her bouncer. And somehow, she had already mastered having her older brothers dote on her endlessly while being near her younger brother could soothe her when nothing else seemed to work.

I have thought a great deal about what I hoped for in Cora's life. I have thought about all the wonders in life that she will never experience. But I have also thought a great deal about her short time with us and what she experienced during that time. The pure joy and love she felt when the nurse placed her in Kelly's arms for the first time. The blurry smile she saw on her grandma's face in the operating room. The wonder her big brothers had when seeing her for the first time. The ease we brought to each other when I held her in my arms. And this one thing I know ~ Cora experienced love. She was truly and deeply loved. She is still truly and deeply loved.

Tuesday, October 23, 2012

Cora's Service 10.28.11


THANKSGIVING FOR LIFE AND RESURRECTION

Cora Lily Murphy

OPENING SENTENCES

Friends, within the healing embrace of God's love we have gathered here to thank God for the life of Cora Lily Murphy and to entrust her into God's eternal care, knowing that God's good and loving purposes for his people cannot be defeated by the power of sin and death.

We are all children of God, and in the faith that God has given us, we turn now to the Lord asking for his comfort and grace to be with us all ― and to be especially present with Suzanne and Kelly and all of their family and friends who were privileged to love Cora during her all too brief time with us on this earth . . .

We gather here as God’s people, conscious of others who have died and of the frailty of our own existence on earth. We gather also to hear God’s word of hope, and to anticipate the future as we remember that our own lives, as well as Cora’s brief life, are always in God’s loving hands.

PRAYER

Compassionate and loving God, yours is the Beauty of childhood and yours is the fullness of years. Comfort us in our sorrow, strengthen us with hope, and breathe peace into our sorrowing hearts. Assure us that the love we had for Cora was not in vain – indeed make it a part of the store of goodness you are even now pouring out upon her in your eternal kingdom.

Help us to bless you for the gift you gave us in her, for the joy she gave all who knew her, for the memories that will abide with us, and for the assurance that she lives forever in the joy and peace of your presence. Guide us through this time of sadness with the light of your love and the strength of your compassion; through Jesus Christ our Lord we pray. Amen.

HYMN 280 Amazing Grace, How Sweet the Sound

SCRIPTURE READINGS

Hear these words from Holy Scriptures, words written by the Apostle Paul as he considered the perils of human life and the sorrows that come to it - and within these - the love of God as revealed through Christ Jesus - who died on the cross that we might live - and rose from the dead that we might have life eternal. I consider that the sufferings of this present time are not worth comparing with the glory about to be revealed to us. We know that in everything that God works for good with those who love him, who are called according to his purpose.

What then shall we say to this? If God is for us, who is against us? He who did not withhold his own Son, but gave him up for us all, will he not also give us all things with him? Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution, or famine, or nakedness or peril, or sword? No - in all these things we are more than conquerors through him who loved us. For I am sure that neither death, nor life, nor angels, nor principalities, nor things present, nor things to come, nor powers, nor height, nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord.

Friends, the Apostle assures us that nothing can separate us from the love of God. Knowing this – even in the midst of our sorrow today - we thank God for the inheritance, the loving embrace that Cora, though but a tender infant, has already received from God.

We thank God, not for taking her from us - for it is not God's will that anyone should perish - but rather for granting her a place with all the saints - a place where, when our time on earth is ended - we may join her and know the fullness of that which, in our life here, we had only just begun to know.


I would like now to share with you two other brief scripture readings and then say a few words about how they relate to what we are doing today.

The first reading is taken from the 18thchapter of Matthews Gospel:

At that time the disciples came to Jesus and asked, "Who is the greatest in the kingdom of heaven?" He called a child, whom he put among them, and said, "Truly I tell you, unless you change and become like children, you will never enter the kingdom of heaven. Whoever becomes humble like this child is the greatest in the kingdom of heaven. Whoever welcomes one such child in my name welcomes me." Take care that you do not despise one of these little ones; for, I tell you, in heaven their angels continually see the face of my Father in heaven. What do you think? If a shepherd has a hundred sheep, and one of them has gone astray, does he not leave the ninety-nine on the mountains and go in search of the one that went astray? And if he finds it, truly I tell you, he rejoices over it more than over the ninety-nine that never went astray. So it is not the will of your Father in heaven that one of these little ones should be lost.”

The second reading is taken from the prophecy of Isaiah and speaks of the time when the Kingdom of God is fully established upon the earth. In it we hear the voice of God speaking of that time which is yet to come:

"Behold, I will create new heavens and a new earth" (says the Lord) "The former things will not be remembered, nor will they come to mind. But be glad and rejoice forever in what I am creating, for I am about to create Jerusalem as a joy and its people as a delight. I will rejoice in Jerusalem and delight in my people; no more shall the sound of weeping be heard in it, or the cry of distress. No more shall there be in it an infant that lives but a few days, or an old person who does not live out a lifetime; for one who dies at a hundred years will be considered a youth, and one who falls short of a hundred will be considered accursed. They shall build houses and dwell in them; they will plant vineyards and eat their fruit. For like the days of a tree shall the days of my people be, and my chosen shall long enjoy the work of their hands.”

This is the word of the Lord. Thanks be to God.


MEDITATION

During these last several days, as we have lived with the untimely death of baby Cora our hearts have been full of questions - chief amongst them being "Why did this happen?" and/or "How did this happen?" These questions have been not only in the hearts and on the minds of Suzanne and Kelly and their families, but upon the lips of many of you who are here this morning and they are always heard at times like this.

We are not here today to answer these questions - even if we could. Rather we are here to mourn - to mourn and to commend Cora into God's care, and to ask God to help us - and most especially to help Suzanne and Kelly, their parents Gwen and John, Janet and Toby, grandfather Gordon, siblings Andrew and Shawn along with their other family members and close friends, through this tragedy.

In the most beautiful of gardens, even those tended by skillful botanists, there is occasionally a rose that buds, but never opens. In every way this rose is like all the others, but something keeps it from blooming. It fades away - or disappears - without having reached maturity. What happens in nature's garden very sadly also happens once in a while in the garden of God's human family. A baby is born ― beautiful and precious, but fails to come to its rightful unfolding. This child, like the bud that never fully opens, is gathered back into God's heavenly garden of souls ― where all imperfections are made perfect; all injustices made right; all mysteries are ultimately explained; and all sorrows turned finally into happiness.

Today, we mourn our own loss of such a child. We weep for Cora and ourselves, just as Jesus himself wept at the death of his dear friend Lazarus. Even if we knew the answers to the questions that rise so naturally in our hearts and minds at times like this, there still would be no adequate explanation for this loss. It is incredibly painful. And I believe it is also painful to God, who created the world intending it to be perfect. As Jesus himself said in our earlier reading: "It is not the will of your Father that one of these little ones should perish, should be lost."

And, as promised to us by God through the prophet Isaiah, there will come a time when there is a new heaven and a new earth ― a time when never again will there be in it an infant who lives but a few days, or an old man who does not live out his years - a time so glorious in its presence that a person who dies at a hundred will be thought a mere youth; and they who fail to reach a hundred will be considered accursed. But this, sadly, is not yet that time. Rather this is the time when heaven remains beyond us – and we on earth below; the time when the joy of eternal life is experienced only in its fullness when our mortal bodies perish, much as a flower can come forth only after a seed or bulb is planted in the earth and loses its form.

In Matthew’s Gospel Jesus spoke of angels above ― angels who watch over the little ones of this earth. He spoke of them when he told his disciples to be careful, and not to think less of little children simply because they are little children ― because in heaven, he said, their angels continually see the face of God. There is a special place in the heart of God and amongst the angels for the little ones of this world just as there is a special place in our hearts today for Cora.

And so we weep at what has happened.

And so too – does God weep along with us.

What can be said that might ease the pain or assuage the grief we all feel today? There isn't much we can say that will help. We can express our sympathy and sorrow. We can offer our words of love, of our care and concern. We can and will pray for God to comfort us. But other than that we don't know what to say about these things.

Suzanne and Kelly, maybe it is because people don't know what to say that they sometimes say things, which, I believe, are not helpful.

Some people may say that Cora's death at this time was God's will. I know you don't believe that.

The God we worship, the God who watches over us, does not will the death of babies or the pain of their parents. Many, many things happen in this world which are not the will of God. That is part of the price of the freedom God has given us.

Some people may say to you that God wanted Cora in heaven with him. While I am confident God has welcomed Cora into his kingdom, I am sure God did not want her to die to keep him company.

Some people may try to comfort you by saying to you that you are still young enough to have another child or that you still have three. All those things are true, but no other child can ever replace Cora. She was her own person.

The empty place her death has left in your heart will not be filled simply because you might have another child, or because Rory, Kyan, and Crosby ― precious and loved by you as they are, remain with you. Nor should it be. Every child, like Cora, is unique and precious.

I’m sure that people who say things like these are well-intentioned and say them from a sincere desire to comfort you. They want to say something that will help. We bless them for it ―- but we know that we are faced with a mystery ―the mystery of life - and of death - for which there are no easy answers.

So "What" then, "are we to say to these things?"

It is not a complete or final answer, but what St. Paul provides, provisionally, at least, is this:

"If God is for us, who can against us? He who did not withhold his own Son, but gave him up

for all of us, will he not with him also give us everything else?"It is important to know that God is for you, that God did not do this to you. God did not will Cora's death or your pain. But God is with you in the midst of it all and will help you through it. God is for you. What’s more, God gave up his own son for us all.



Kelly and Suzanne, I believe God shares your pain ― God also had a child, a son who died, on a cross, for us. And because Jesus rose to new life we can be confident that Cora has new life also. Today ― in our grief ― we believe there is another angel in heaven. Cling to that hope ― that promise from God ― and allow your tears to help wash away the pain in the days and months to come.

PRAYER OF THANKSGIVING

Gracious and Loving God, whose Son Jesus took little children into his

arms and blessed them; we thank you that you gave Cora to us, even for a

brief time; and we thank you that you caused our hearts to love her.

We praise and bless you for the assurance that you have received her to

yourself, and that you will keep her now and always.

It was your love that gave us life, O God, and your care never fails.

Yours is the beauty that was in infant Cora, and yours also the light that shines

in the face of older age.

For all whom you have given to be dear to us, we thank you, and especially

for Cora Lily, who now lives with you.

Into your love we commend her, remembering the words of Jesus,

Let the children come to me, for of such is the kingdom of heaven.

None of us, O Lord, is wise enough to understand or know why this happened;

but we are human enough to grieve with Kelly and Suzanne, Gwen and John,

Janet and Toby, and all their relatives and close friends, and to express

our care and concern for them.

In these moments together we return to you the potential of Cora’s infant life,

which for us will not be.

Even as we do so, help us recommit to you the potential in our own lives,

which ― through your presence and power ― may yet be realized to your glory.

Hear us, we ask, as we commune with you now in a time of silence ―

these and other thoughts we have.

Unto your eternal love and care, O God, we commend Cora Lily,

grateful for your promises of eternal and abundant life.

O God, whose compassion never fails; we commend to you those who mourn,

especially Suzanne and Kelly.

We remember too all the other close family members who have been denied the joy of seeing Cora blossom and grow in our midst.

Grant unto them, and to all of us who weep today, your strength - and uphold them with your living hope.

May the words of Jesus, which revealed his love for little children,

speak peace to their troubled hearts.

Enable them to know that Cora is with you, safe in your eternal care,

blessed beyond our imagining.

And reassure them that in your own good time they will see her again.

Hold us all in your keeping, and make tender and true the love we have

for each other.

With your peace, O God, uphold us, and in your love keep us,

this day and forevermore. Amen.


HYMN 404 Precious Lord, Take My Hand

BENEDICTION

Now may the Lord bless you and keep you,

the Lord make his face to shine upon you and be gracious unto you,

the Lord lift up his countenance upon you and give you peace,

this day and unto life eternal. Amen.

Saturday, October 20, 2012

Thankful

Last November I wrote one of these thankful statements each day over a period of several weeks. I feel it is worthwhile to publish them again, though this time all at once. I must note that this list is missing many people (in particular my brother, my in-laws, my brother-in-law and his wife), but copied below is the original series of statements.


I am thankful for all the members of the West Glens Fallls EMS, the Queensbury Central Fire Department, and the Warren County Sheriff's office who were at our home within minutes of our 911 call. We didn't learn most of their names, but are thankful they left their homes on a Saturday night to rush to ours.

I am thankful for our neighbors ~ the ones who came to stay with our boys when we rushed to the hospital, the ones who brought us food, the ones who came and sat with us, even when we couldn't speak, and the ones who have been there in numerous other ways.

I am thankful for the ER staff at Glens Falls Hospital who were able to restart Cora's heart and stabilize her for her trip to Albany. Again, we did not learn many names, but appreciate the nurses who worked around us so we could hold Cora's hands, the doctors who answered our endless stream of questions, the aide who held Cora's respirator tubing in place for well over an hour, the clinical manager who came in one her night off to support our family, and all the other staff who helped try to save our baby girl.

I am thankful for the quiet moment of Cora's baptism. It was the simplest of baptisms with our minister, my parents, the hospital staff, Kelly and me; the water was in a paper cup from the tap;  and for a moment the pace slowed down as Cora was baptized.

I am thankful for Amy, Cora's first pediatric ICU nurse at Albany. I could tell you about many ways she helped us, but to me the most important was the steady support she provided us in the minutes and hours after we learned Cora would not survive.

I am thankful for Krystal, Cora's second PICU nurse. She helped us with the delicate process of moving Cora from one set of arms to another, she arranged for a room and food for our parents and children; and she cried with us when Rory asked when Cora was coming home, during the day as she saw our anguish, and at night when she said she would see us in the morning and I broke down telling her we wouldn't be there.

I am thankful for Rebecca, Cora's last PICU nurse. Recebba guided us through the darkest moments of our lives. I wish I could tell you of all the things she did, but, quite simply, I think writing of them, and asking you to read them, would be too much, and take away from the grace and compassion with which Rebecca cared for Cora.

I am thankful for Claire and Larry, who guided us through the process of making arrangements for Cora. We went to Claire and Larry completely overwhelmed, and they helped us with every step. Claire also invited us to come be with Cora as often as we wanted, moments for which I will always be grateful.

I am thankful for the support of my friends. The ones who came over right away, the ones who gave us a little space but were there when we needed them, the ones who brought dinner, the ones who sent cards, the ones who emailed, the ones who contacted us via Facebook, the ones who called, the ones like you.

I am thankful for my parents. I have always been close to them, but since the twins were born, and since we lost Cora, they have been here to help when I didn't even realized I needed their help. I am blessed to have them, and words could never convey exactly how much they mean to me.

I am thankful for my husband. I cannot imagine any part of my life without him. This path we now walk is nothing we ever imagined and all I know is that I could not do it without him.  "Love is a great thing, a great good in every way..."

I am thankful for all of the people who have embraced the sand pictures for Cora ~ family, friends, and strangers. I hope those who do this are as moved by the process as we are by the results.

I am thankful for my three little boys. They have brought smiles, light, and laughter into our home. I love watching them as they grow independently and as they develop their relationships with each other.

I am thankful for Cora.





Thursday, October 18, 2012

Ramblings

A long, rambling update since I want Kelli and Meg to practice their editing skills (Bob, you can feel free to get out your red pen too. Heck, anyone is welcome. Just don't tell me about it.):
Physically, I feel pretty good. I have been out of aggressive treatment for about 6 weeks now, and the more distance I get from treatment, the better I feel. I am swimming and slogging, wait, I mean jogging, again. My strength is not where it was at the beginning of the summer, but I am able to at least keep up with my "Lane 4" swimming friends.
I do have some side effects from the treatments - my fingers and toes tingle and/or go numb due to nerve damage and I have some ringing in my ears (so forgive me if I ask you to repeat yourself ~ especially in noisy areas!). But I really cannot complain ~ swimming and jogging feel odd with numb toes, but I am getting used it it.
Where things are at:
Liver tumors: scan in September showed that they are stable and there are no symptoms that indicate they are changing; each month I get a shot in the arse to control the symptoms and that med is also thought to, in some cases, help keep the tumors in check. I will get another scan in November to see how things are looking.
My hope is that at some point my oncologists will say that these tumors are not high grade, they are low grade. This type of low grade tumor is called carcinoid and it can stay stable for long-ish periods of time. My oncologists hint that it could be carcinoid, but I think my diagnosis has gone back and forth so many times, no one wants to jump the gun on revising it again without more data.
Cervical cancer: next Friday (10/26) I will have my cervical biopsy. Once those results are in there are three options (a) no cancer cells (woo hoo!) (b) cancer cells, hysterectomy required (c) cancer cells, but we can take a watch and wait approach. I am eager to get this done and hopefully hear that (a) is the outcome. I would love to have this "off the plate."
[An amusing side story: My very, very serious surgeon and I were discussing my biopsy date and he referred to my "hot pelvis." I had to laugh at that term ~ radioactively hot or otherwise, it amused the seventh grader in me.]
Oh, and I did not have a hysterectomy in the beginning because the cancer was too widespread. They would not have been able to get clear margins and oncologists like to avoid combining radiation and surgery due to the potential complications. 
Emotionally, this has been a painful time. The time from the day Cora was born until the day she died is feeling like a very slow crawl. A year ago our daughter was with us. This coming Saturday night was the night we raced to the ER with her; the date was the 22nd, but for me, I am dreading this Saturday, the third Saturday in October. I keep thinking I just need to make it from then until the 28th, the day of her funeral.

Monday, October 15, 2012

The Wonder

Our house tends to be pretty busy with three little boys. And by pretty busy I really mean nuts. We make a point of doing one-on-one activities with each boy during the week, but we also try to do bigger events on occasion, such as one-on-one trips. One of the things I love about these one-on-one trips is really being able to focus on what one child is doing or saying. This helps me hear the wonder in their voices as they experience new things, and experience that wonder myself.

Last week Rory and I went to Boston for an overnight. Boston is such a walkable city so we meandered from place to place and explored all sorts of little things: jumping on all sidewalk doors (awesome jangly sound), balancing on concrete edging, tracing a path through the 'maze' on manhole covers, and jumping into a huge puddle and then insisting that one's feet were not cold or uncomfortable.

On Thursday night we walked from our hotel to the North End. The path we took brought us by the Holocaust Memorial. As we walked toward the first tower, smoke rose from the floor grate. Rory was startled and a little frightened. We spoke in simple terms about the memorial, and then walked hand-in-hand though each of the six towers. He was respectful during our time at the memorial, and it struck me how much he has matured in the past few months.


Sunday, October 14, 2012

Technology

I am fine - I have had a trifecta of issues that have prevented me from writing.

1) A mini-trip to Boston
2) No Internet service at home
3) My computer bit the dust

I hope to be able to do a real post later today. Thanks for all of the messages, I didn't mean to worry anyone!

Friday, October 5, 2012

The Beach

Kelly and I are away on an adults-only vacation right now. The intent was to celebrate my being done with chemo and radiation. We came to a slightly off-season beach town because I have always loved the ocean.

The last time I was at the ocean was during the summer of 2011. I was 7 months pregnant with the twins and down in the sand with Rory and Ky (getting up was not graceful). We had such a good time swimming and building castles in the sand, and it is the first vacation Rory remembers.

Now, I have a beautiful view of the ocean from the hotel room, we have been here for two days, and the walkway that leads to the beach is a two minute walk. But I have yet to step onto the sand. I have not yet written Cora's name in the sand, I thought I wanted to, but I can't. One year ago Cora was alive. It is 2:17am as I type this, and knowing her, it is likely she was also wide awake. I don't want to memorialize my daughter. I want her here.


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